{"id":832,"date":"2025-09-16T07:04:17","date_gmt":"2025-09-16T07:04:17","guid":{"rendered":"https:\/\/yamicc.org\/constitution\/?p=832"},"modified":"2025-10-16T12:55:44","modified_gmt":"2025-10-16T12:55:44","slug":"yamicc-explained-why-were-building-what-were-building","status":"publish","type":"post","link":"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/","title":{"rendered":"Yamicc Explained:\u00a0Why we\u2019re building what we\u2019re building"},"content":{"rendered":"<p>In recent decades, treatment and research in oncology have made huge strides. But for people with a rare form of cancer, survival chances still lag far behind.<br><br>Finding effective treatments is one of the hardest challenges in these cancers, and not just because of biology. It\u2019s a systemic issue.<br>Patient numbers are low, collaboration is limited, and the right infrastructure for data sharing is missing. Therefore, research into rare cancers is fragmented, expensive and hard to scale.<br><br>Yet every cancer patient deserves an equal chance at a better outcome.<br>We believe that starts by rethinking how clinical trials are done with reaching more patients, better data and collaboration at the core. Eventually, we aim to make personalized treatment a reality.<br><br>Over the coming weeks, we\u2019ll share:<br>&#8211; Why rare cancers need a different approach<br>&#8211; Three structural challenges holding back progress<br>&#8211; How coordination, technology and shared infrastructure can change that<br><br>Changing the system isn\u2019t something we do alone. It takes all of us: doctors, researchers, hospitals, funders, donors, data experts and patients.<br><br>Better data. More effective treatments. Faster.<\/p>","protected":false},"excerpt":{"rendered":"<p>In recent decades, treatment and research in oncology have made huge strides. But for people with a rare form of cancer, survival chances still lag far behind. Finding effective treatments is one of the hardest challenges in these cancers, and not just because of biology. It\u2019s a systemic issue.Patient numbers are low, collaboration is limited, [&hellip;]<\/p>","protected":false},"author":2,"featured_media":834,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[],"class_list":["post-832","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Yamicc Explained:\u00a0Why we\u2019re building what we\u2019re building - Yamicc<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/\" \/>\n<meta property=\"og:locale\" content=\"nl_NL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Yamicc Explained:\u00a0Why we\u2019re building what we\u2019re building - Yamicc\" \/>\n<meta property=\"og:description\" content=\"In recent decades, treatment and research in oncology have made huge strides. But for people with a rare form of cancer, survival chances still lag far behind. Finding effective treatments is one of the hardest challenges in these cancers, and not just because of biology. It\u2019s a systemic issue.Patient numbers are low, collaboration is limited, [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/\" \/>\n<meta property=\"og:site_name\" content=\"Yamicc\" \/>\n<meta property=\"article:published_time\" content=\"2025-09-16T07:04:17+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-10-16T12:55:44+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/yamicc.org\/wp-content\/uploads\/2025\/10\/1756718531989.jpeg\" \/>\n\t<meta property=\"og:image:width\" content=\"800\" \/>\n\t<meta property=\"og:image:height\" content=\"450\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Carli Wischhoff\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Geschreven door\" \/>\n\t<meta name=\"twitter:data1\" content=\"Carli Wischhoff\" \/>\n\t<meta name=\"twitter:label2\" content=\"Geschatte leestijd\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuut\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/\"},\"author\":{\"name\":\"Carli Wischhoff\",\"@id\":\"https:\/\/yamicc.org\/nl\/#\/schema\/person\/6bd300b30e2ec979e37a6ffd9bc71583\"},\"headline\":\"Yamicc Explained:\u00a0Why we\u2019re building what we\u2019re building\",\"datePublished\":\"2025-09-16T07:04:17+00:00\",\"dateModified\":\"2025-10-16T12:55:44+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/\"},\"wordCount\":190,\"publisher\":{\"@id\":\"https:\/\/yamicc.org\/nl\/#organization\"},\"image\":{\"@id\":\"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/yamicc.org\/wp-content\/uploads\/2025\/10\/1756718531989.jpeg\",\"articleSection\":[\"News\"],\"inLanguage\":\"nl-NL\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/\",\"url\":\"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/\",\"name\":\"Yamicc Explained:\u00a0Why we\u2019re building what we\u2019re building - Yamicc\",\"isPartOf\":{\"@id\":\"https:\/\/yamicc.org\/nl\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/yamicc.org\/wp-content\/uploads\/2025\/10\/1756718531989.jpeg\",\"datePublished\":\"2025-09-16T07:04:17+00:00\",\"dateModified\":\"2025-10-16T12:55:44+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/#breadcrumb\"},\"inLanguage\":\"nl-NL\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"nl-NL\",\"@id\":\"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/#primaryimage\",\"url\":\"https:\/\/yamicc.org\/wp-content\/uploads\/2025\/10\/1756718531989.jpeg\",\"contentUrl\":\"https:\/\/yamicc.org\/wp-content\/uploads\/2025\/10\/1756718531989.jpeg\",\"width\":800,\"height\":450},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/yamicc.org\/nl\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Yamicc Explained:\u00a0Why we\u2019re building what we\u2019re building\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/yamicc.org\/nl\/#website\",\"url\":\"https:\/\/yamicc.org\/nl\/\",\"name\":\"Yamicc\",\"description\":\"Effective treatments for rare cancer patients, aiming for the highest quality of life\",\"publisher\":{\"@id\":\"https:\/\/yamicc.org\/nl\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/yamicc.org\/nl\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"nl-NL\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/yamicc.org\/nl\/#organization\",\"name\":\"Yamicc\",\"url\":\"https:\/\/yamicc.org\/nl\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"nl-NL\",\"@id\":\"https:\/\/yamicc.org\/nl\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/yamicc.org\/wp-content\/uploads\/2024\/08\/Yamicc-logo.png\",\"contentUrl\":\"https:\/\/yamicc.org\/wp-content\/uploads\/2024\/08\/Yamicc-logo.png\",\"width\":2771,\"height\":1125,\"caption\":\"Yamicc\"},\"image\":{\"@id\":\"https:\/\/yamicc.org\/nl\/#\/schema\/logo\/image\/\"}},{\"@type\":\"Person\",\"@id\":\"https:\/\/yamicc.org\/nl\/#\/schema\/person\/6bd300b30e2ec979e37a6ffd9bc71583\",\"name\":\"Carli Wischhoff\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"nl-NL\",\"@id\":\"https:\/\/yamicc.org\/nl\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/6ba9306103ccdbbc9d2233a80a36352397ce067d2d7d9aef6ea4546937429a43?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/6ba9306103ccdbbc9d2233a80a36352397ce067d2d7d9aef6ea4546937429a43?s=96&d=mm&r=g\",\"caption\":\"Carli Wischhoff\"},\"url\":\"https:\/\/yamicc.org\/nl\/author\/cwischhoff\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Yamicc Explained:\u00a0Why we\u2019re building what we\u2019re building - Yamicc","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/","og_locale":"nl_NL","og_type":"article","og_title":"Yamicc Explained:\u00a0Why we\u2019re building what we\u2019re building - Yamicc","og_description":"In recent decades, treatment and research in oncology have made huge strides. But for people with a rare form of cancer, survival chances still lag far behind. Finding effective treatments is one of the hardest challenges in these cancers, and not just because of biology. It\u2019s a systemic issue.Patient numbers are low, collaboration is limited, [&hellip;]","og_url":"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/","og_site_name":"Yamicc","article_published_time":"2025-09-16T07:04:17+00:00","article_modified_time":"2025-10-16T12:55:44+00:00","og_image":[{"width":800,"height":450,"url":"https:\/\/yamicc.org\/wp-content\/uploads\/2025\/10\/1756718531989.jpeg","type":"image\/jpeg"}],"author":"Carli Wischhoff","twitter_card":"summary_large_image","twitter_misc":{"Geschreven door":"Carli Wischhoff","Geschatte leestijd":"1 minuut"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/#article","isPartOf":{"@id":"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/"},"author":{"name":"Carli Wischhoff","@id":"https:\/\/yamicc.org\/nl\/#\/schema\/person\/6bd300b30e2ec979e37a6ffd9bc71583"},"headline":"Yamicc Explained:\u00a0Why we\u2019re building what we\u2019re building","datePublished":"2025-09-16T07:04:17+00:00","dateModified":"2025-10-16T12:55:44+00:00","mainEntityOfPage":{"@id":"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/"},"wordCount":190,"publisher":{"@id":"https:\/\/yamicc.org\/nl\/#organization"},"image":{"@id":"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/#primaryimage"},"thumbnailUrl":"https:\/\/yamicc.org\/wp-content\/uploads\/2025\/10\/1756718531989.jpeg","articleSection":["News"],"inLanguage":"nl-NL"},{"@type":"WebPage","@id":"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/","url":"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/","name":"Yamicc Explained:\u00a0Why we\u2019re building what we\u2019re building - Yamicc","isPartOf":{"@id":"https:\/\/yamicc.org\/nl\/#website"},"primaryImageOfPage":{"@id":"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/#primaryimage"},"image":{"@id":"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/#primaryimage"},"thumbnailUrl":"https:\/\/yamicc.org\/wp-content\/uploads\/2025\/10\/1756718531989.jpeg","datePublished":"2025-09-16T07:04:17+00:00","dateModified":"2025-10-16T12:55:44+00:00","breadcrumb":{"@id":"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/#breadcrumb"},"inLanguage":"nl-NL","potentialAction":[{"@type":"ReadAction","target":["https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/"]}]},{"@type":"ImageObject","inLanguage":"nl-NL","@id":"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/#primaryimage","url":"https:\/\/yamicc.org\/wp-content\/uploads\/2025\/10\/1756718531989.jpeg","contentUrl":"https:\/\/yamicc.org\/wp-content\/uploads\/2025\/10\/1756718531989.jpeg","width":800,"height":450},{"@type":"BreadcrumbList","@id":"https:\/\/yamicc.org\/nl\/yamicc-explained-why-were-building-what-were-building\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/yamicc.org\/nl\/"},{"@type":"ListItem","position":2,"name":"Yamicc Explained:\u00a0Why we\u2019re building what we\u2019re building"}]},{"@type":"WebSite","@id":"https:\/\/yamicc.org\/nl\/#website","url":"https:\/\/yamicc.org\/nl\/","name":"Yamicc","description":"Effective treatments for rare cancer patients, aiming for the highest quality of life","publisher":{"@id":"https:\/\/yamicc.org\/nl\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/yamicc.org\/nl\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"nl-NL"},{"@type":"Organization","@id":"https:\/\/yamicc.org\/nl\/#organization","name":"Yamicc","url":"https:\/\/yamicc.org\/nl\/","logo":{"@type":"ImageObject","inLanguage":"nl-NL","@id":"https:\/\/yamicc.org\/nl\/#\/schema\/logo\/image\/","url":"https:\/\/yamicc.org\/wp-content\/uploads\/2024\/08\/Yamicc-logo.png","contentUrl":"https:\/\/yamicc.org\/wp-content\/uploads\/2024\/08\/Yamicc-logo.png","width":2771,"height":1125,"caption":"Yamicc"},"image":{"@id":"https:\/\/yamicc.org\/nl\/#\/schema\/logo\/image\/"}},{"@type":"Person","@id":"https:\/\/yamicc.org\/nl\/#\/schema\/person\/6bd300b30e2ec979e37a6ffd9bc71583","name":"Carli Wischhoff","image":{"@type":"ImageObject","inLanguage":"nl-NL","@id":"https:\/\/yamicc.org\/nl\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/6ba9306103ccdbbc9d2233a80a36352397ce067d2d7d9aef6ea4546937429a43?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/6ba9306103ccdbbc9d2233a80a36352397ce067d2d7d9aef6ea4546937429a43?s=96&d=mm&r=g","caption":"Carli Wischhoff"},"url":"https:\/\/yamicc.org\/nl\/author\/cwischhoff\/"}]}},"_links":{"self":[{"href":"https:\/\/yamicc.org\/nl\/wp-json\/wp\/v2\/posts\/832","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/yamicc.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/yamicc.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/yamicc.org\/nl\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/yamicc.org\/nl\/wp-json\/wp\/v2\/comments?post=832"}],"version-history":[{"count":2,"href":"https:\/\/yamicc.org\/nl\/wp-json\/wp\/v2\/posts\/832\/revisions"}],"predecessor-version":[{"id":835,"href":"https:\/\/yamicc.org\/nl\/wp-json\/wp\/v2\/posts\/832\/revisions\/835"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/yamicc.org\/nl\/wp-json\/wp\/v2\/media\/834"}],"wp:attachment":[{"href":"https:\/\/yamicc.org\/nl\/wp-json\/wp\/v2\/media?parent=832"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/yamicc.org\/nl\/wp-json\/wp\/v2\/categories?post=832"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/yamicc.org\/nl\/wp-json\/wp\/v2\/tags?post=832"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}