In recent decades, treatment and research in oncology have made huge strides. But for people with a rare form of cancer, survival chances still lag far behind.
Finding effective treatments is one of the hardest challenges in these cancers, and not just because of biology. It’s a systemic issue.
Patient numbers are low, collaboration is limited, and the right infrastructure for data sharing is missing. Therefore, research into rare cancers is fragmented, expensive and hard to scale.
Yet every cancer patient deserves an equal chance at a better outcome.
We believe that starts by rethinking how clinical trials are done with reaching more patients, better data and collaboration at the core. Eventually, we aim to make personalized treatment a reality.
Over the coming weeks, we’ll share:
– Why rare cancers need a different approach
– Three structural challenges holding back progress
– How coordination, technology and shared infrastructure can change that
Changing the system isn’t something we do alone. It takes all of us: doctors, researchers, hospitals, funders, donors, data experts and patients.
Better data. More effective treatments. Faster.
